NCT06203106

NYSCF Scientific Discovery Biobank

• Status: Recruiting
• Phase: —
• Study type: Observational
• Enrollment: 10,000 (estimated)
• Sponsor: New York Stem Cell Foundation Research Institute · Academic / Other
• Sex: All
• Age: 30 Days
• Healthy volunteers: Not accepted

Summary

The New York Stem Cell Foundation (NYSCF) Research Institute is performing this research to accelerate diverse disease research using cells from the body (such as skin or blood cells) to make stem cells and other types of cells, conduct research on the samples, perform genetic testing, and store the samples for future use. Through this research, researchers hope to identify future treatments or even cures for the major diseases of our time.

Detailed description

Researchers at the New York Stem Cell Foundation (NYSCF) Research Institute study diverse diseases, conditions, and traits by creating stem cells from biological samples. These "pluripotent" stem cells can become any cell in the human body, including cells that may be difficult, invasive, or impossible to obtain directly. Additionally, researchers perform genetic testing to learn more about DNA, a material in most cells that contains instructions for the body's development and functions (such as traits like eye color and risk of certain diseases). A piece of DNA that determines the specific role of a cell is called a "gene." If the instructions in a gene are abnormal, this can lead to disease. Participation in the study involves: (1) completion of health questionnaires, (2) providing a skin and/or blood sample from which stem cells may be created, (3) collection of a saliva sample for genetic analysis, and (4) possible future followup to provide additional information or learn about other research studies. This study is not a clinical trial.

Conditions

• ALS
• Amyotrophic Lateral Sclerosis
• Alzheimer Disease
• Alzheimer Disease, Early Onset
• Alzheimer Disease, Late Onset
• Batten Disease
• Corticobasal Degeneration
• Dementia
• Frontotemporal Dementia
• Huntington Disease
• Lewy Body Disease
• Multiple Sclerosis
• Multiple System Atrophy
• Parkinson Disease
• Parkinson's Disease and Parkinsonism
• Progressive Supranuclear Palsy
• INAD
• Diabetes
• Diabetes Mellitus
• Diabetes Mellitus, Type 2
• Diabetes Mellitus, Type 1
• Macular Degeneration
• Ovarian Cancer
• Cervical Cancer
• Uterine Cancer
• Vaginal Cancer
• Vulvar Cancer
• PTSD
• Post Traumatic Stress Disorder

Interventions

Type	Name	Description
OTHER	Biological Sample Collection	Skin biopsy (2-3mm) and/or blood (up to 50 mL); saliva; excess/ leftover biospecimens that were (or will be) collected for other purposes (e.g., medical procedure).

Timeline

• Start date: 2022-11-10
• Primary completion: 2045-11-10
• Completion: 2045-11-10
• First posted: 2024-01-12
• Last updated: 2025-03-03

Locations

1 site across 1 country: United States