Trials / Withdrawn
WithdrawnNCT04541875
Medication Adherence and Non-adherence in Adults With Rare Disease
A Longitudinal, Digital Study Using the Medication Adherence Reasons Scale (MAR-Scale) to Identify the Reasons for Non-adherence to Medications in Rare Disease
- Status
- Withdrawn
- Phase
- —
- Study type
- Observational
- Enrollment
- 0 (actual)
- Sponsor
- Xperiome · Academic / Other
- Sex
- All
- Age
- 18 Years
- Healthy volunteers
- Accepted
Summary
The purpose of this study is to use the Medication Adherence Reasons Scale (MAR-Scale) to determine the extent of non-adherence to specific medications indicated to treat cystic fibrosis, hemophilia (A or B), idiopathic pulmonary fibrosis, myasthenia gravis, and sickle cell disease, and to identify the top patient-reported reasons for non-adherence. Internal reliability of the MAR-Scale will also be assessed in each condition.
Conditions
- Cystic Fibrosis
- Hemophilia A
- Hemophilia B
- Idiopathic Pulmonary Fibrosis
- Myasthenia Gravis
- Sickle Cell Disease
Interventions
| Type | Name | Description |
|---|---|---|
| OTHER | MAR-Scale | The MAR-Scale is a 20-item questionnaire based on commonly reported reasons for non-adherence to medications. |
Timeline
- Start date
- 2021-01-01
- Primary completion
- 2022-09-01
- Completion
- 2022-09-01
- First posted
- 2020-09-09
- Last updated
- 2022-05-12
Source: ClinicalTrials.gov record NCT04541875. Inclusion in this directory is not an endorsement.