| Not Yet Recruiting | Establishing the Preliminary Utility of a Novel Pediatric Manual Mobile Standing Wheelchair NCT07290556 | Optimal Mobility, Inc | N/A |
| Not Yet Recruiting | Spina Bifida Healthcare Navigator Program NCT07531862 | University of Pittsburgh | N/A |
| Not Yet Recruiting | Bowel Continence Across the Lifespan in People With Spina Bifida NCT07390318 | David Chu | — |
| Recruiting | Efficacy of Intravesical Oxybutynin in Children With Neurogenic Bladder Dysfunction NCT07027020 | Central Hospital, Nancy, France | Phase 3 |
| Recruiting | Transcutaneous Tibial Nerve Stimulation (TTNS) Treatment in Spina Bifida Pediatric Patients With Neurogenic Bl NCT06025734 | University of Texas Southwestern Medical Center | N/A |
| Recruiting | Comparing Digitally and Traditionally Made Ankle Foot Orthoses NCT06828653 | Holland Bloorview Kids Rehabilitation Hospital | N/A |
| Recruiting | Transcutaneous Spinal Stimulation for Children and Youth With Spina Bifida NCT06918119 | Mayo Clinic | N/A |
| Recruiting | Autologous Human Umbilical Cord Tissue Patch for Postnatal Closure of Open Neural Tube Defects NCT06929572 | The University of Texas Health Science Center, Houston | N/A |
| Not Yet Recruiting | Enema Device for Children With Spina Bifida NCT05253196 | University of Colorado, Denver | N/A |
| Completed | Plyometric vs Resistance Training for Trunk Balance in Children With Spina Bifida NCT07125807 | Okan University | N/A |
| Completed | High Intensity Exercise and Improving Physical Activity Among People With Neurologic Dysfunction NCT06945835 | University of Hartford | N/A |
| Recruiting | QUALAS Validation in Dutch NCT06723951 | Erasmus Medical Center | — |
| Not Yet Recruiting | Effectiveness of Biofeedback Training in Children with Neurogenic Bladder and Bowel Disorder Wıth Spina Bifida NCT06618378 | Hasan Kalyoncu University | N/A |
| Completed | Retrospective Study on the WalkOn AFO in Children or Teenagers With Neurological Pathologies NCT06740006 | Otto Bock France SNC | — |
| Completed | The Study Aims to Improve the Accuracy of Detecting Spina Bifida During Early Ultrasound Scans. to Achieve Thi NCT06566014 | Copenhagen Academy for Medical Education and Simulation | N/A |
| Recruiting | Psychosocial Teleassistance Programme for Adults With Spina Bifida NCT07178873 | University of Deusto | N/A |
| Recruiting | Evaluation of muLtimodal and Non-invasive SPINa Bifida Neurovessels During Prospective Follow-up NCT06041334 | Rennes University Hospital | N/A |
| Recruiting | Evaluation of the Transitional and Lifelong Care Program NCT05849285 | Western University, Canada | — |
| Active Not Recruiting | Evaluation of Depression and Anxiety Levels of Parents of Children with Spina Bifida NCT06802770 | Marmara University | — |
| Not Yet Recruiting | Downstream Effects of Personalized 'Top-down' Participation-based Interventions Among Youth With Physical Disa NCT05784285 | McGill University | N/A |
| Unknown | Examining Capacity Building of Youth With Physical Disabilities to Pursue Participation Following the PREP Int NCT06007885 | McGill University | N/A |
| Completed | High Intensity Functional Training for Individuals With Neurologic Diagnoses and Their Care Partners NCT05951985 | Arkansas Colleges of Health Education | N/A |
| Completed | A New Training to Enhance Physical Activity in Adolescents With Cerebral Palsy NCT05865418 | University of Alabama at Birmingham | N/A |
| Completed | CIC Behavioral Economics in Children With Spina Bifida NCT05562713 | Duke University | N/A |
| Completed | A Collaboration Between the EAU-ESPU Pediatric Urology Guidelines and the IFSBH NCT06725745 | Erasmus Medical Center | — |
| Recruiting | Evaluating Long-term Use of a Pediatric Robotic Exoskeleton (P.REX/Agilik) to Improve Gait in Children With Mo NCT05726591 | National Institutes of Health Clinical Center (CC) | N/A |
| Recruiting | Fetoscopic Neural Tube Defect Repair NCT06946563 | Oregon Health and Science University | — |
| Unknown | Complications of Enterocystoplasty in Children NCT05840874 | Dr Christelle DESTINVAL | — |
| Recruiting | Impact of Standing Programs in Children With Spina Bifida: A Single Subject Design NCT06419049 | University of St. Augustine for Health Sciences | N/A |
| Completed | Intervention on Bone Health in Wheelchair Users NCT05615402 | Norwegian School of Sport Sciences | N/A |
| Completed | Urinary Artificial Sphincter in Children NCT05858840 | University of Lorraine | — |
| Completed | Urinary Artificial Sphincter in Children NCT06734429 | University Hospital, Clermont-Ferrand | — |
| Completed | Urinary Calculi After Bladder Augmentation in Children NCT06734403 | University Hospital, Clermont-Ferrand | — |
| Terminated | StoMakker Mobile Application NCT06065995 | Academisch Medisch Centrum - Universiteit van Amsterdam (AMC-UvA) | N/A |
| Completed | Robotic Walking for Children Who Cannot Walk NCT05473676 | University of Calgary | N/A |
| Completed | Salt-FA to Increase Folate Levels NCT06174883 | Hydrocephalus and Neuroscience Institute | — |
| Completed | Using Iodized Salt to Improve Serum Folate, B12 and Iron Levels NCT06904612 | Hydrocephalus and Neuroscience Institute | — |
| Completed | Effects of Progressive Resistance Exercise Training on Endurance and Functional Mobility in Children With Spin NCT05719636 | Riphah International University | N/A |
| Completed | The Effects of a Powered Knee Orthosis on Gait Kinematics of Children With Knee Extension Deficiency NCT05330052 | University of British Columbia | N/A |
| Active Not Recruiting | Grand Valley State University (GVSU) Skills on Wheels NCT05339932 | Grand Valley State University | N/A |
| Completed | Maternal-fetal Immune Responses to Fetal Surgery NCT04484441 | Mayo Clinic | — |
| Active Not Recruiting | Pediatric Powered Wheelchair Standing Devices: An Exploratory Study NCT05117827 | Grand Valley State University | N/A |
| Active Not Recruiting | In Utero Fetoscopic Repair Program for Sacral Myelomeningoceles and Mye-LDM NCT04770805 | Assistance Publique - Hôpitaux de Paris | N/A |
| Unknown | The Role of Active Administration of Peristeen Bowel Evacuation for the Management of Urinary Tract Infection NCT04815226 | Seoul National University Hospital | N/A |
| Completed | Complications of Bladder Augmentation in Children NCT06733194 | University Hospital, Clermont-Ferrand | — |
| Active Not Recruiting | Fetoscopic NEOX Cord 1K® Spina Bifida Repair NCT04243889 | The University of Texas Health Science Center, Houston | N/A |
| Unknown | The Impact of Participation on Body Functions Among Youth With Physical Disabilities NCT04288453 | McGill University | N/A |
| Unknown | Virtual Peer Health Coaching for Adolescents With Disabilities NCT05587634 | Spaulding Rehabilitation Hospital | N/A |
| Terminated | READYorNot[TM] Brain-Based Disabilities Trial NCT03852550 | McMaster University | N/A |
| Completed | Bladder Neck Surgery in Children with Neurogenic Bladder NCT06734390 | University Hospital, Clermont-Ferrand | — |
| Completed | Bladder Neck Surgery in Children With Neurogenic Bladder NCT05861011 | University of Lorraine | — |
| Active Not Recruiting | Incontinence and Quality of Life in Children With Spina Bifida NCT03410667 | Indiana University | N/A |
| Recruiting | Mobile Health Self-Management and Support System for Chronic and Complex Health Conditions NCT02592291 | University of Pittsburgh | N/A |
| Completed | Movement-2-Music: Lakeshore Examination of Activity, Disability, and Exercise Response Study NCT03797378 | University of Alabama at Birmingham | N/A |
| Completed | Minimally Invasive Fetoscopic Regenerative Repair of Spina Bifida - A Pilot Study NCT03936322 | Rodrigo Ruano | N/A |
| Completed | Awareness Levels of Caregivers of Disabled Children NCT05228405 | Kahramanmaras Sutcu Imam University | — |
| Completed | Physical Capacity of Spina Bifida and Factors Affecting NCT06541366 | Saglik Bilimleri Universitesi Gazi Yasargil Training and Research Hospital | — |
| Unknown | Fecal Microbium Change in Pediatric Patients With Spina Bifida: Prospective Case-control Study NCT04186130 | Yonsei University | — |
| Recruiting | In-Utero Endoscopic Correction of Spina Bifida NCT04362592 | University of Southern California | N/A |
| Recruiting | Laparotomy Versus Percutaneous Endoscopic Correction of Myelomeningocele NCT03856034 | USFetus | N/A |
| Not Yet Recruiting | Urothelium Tissue Engineering Using Biopsies From Transurethral Resection of Prostate NCT03698721 | Central Hospital, Nancy, France | — |
| Completed | Telemedicine in Spina Bifida Transition: A Pilot Study NCT03466996 | University of Alabama at Birmingham | N/A |
| Completed | A Wheelchair Propulsion Training Program NCT04009187 | Washington University School of Medicine | N/A |
| Unknown | Children and Teens in Charge of Their Health NCT03523806 | Holland Bloorview Kids Rehabilitation Hospital | N/A |
| Completed | The Effectiveness of Participation-focused Interventions on Body Functions of Youth With Physical Disabilities NCT03851107 | McGill University | N/A |
| Completed | Urological and Renal Disease Engaging Adolescents in Adherence Collaborative Trial NCT03045276 | Children's Hospital of Philadelphia | N/A |
| Completed | Spina Bifida in Daily Life: an Exploratory Study NCT03148301 | Universitaire Ziekenhuizen KU Leuven | — |
| Completed | Post-operative Lite Run Study NCT03135145 | Gillette Children's Specialty Healthcare | N/A |
| Active Not Recruiting | Fetoscopic Repair of Isolated Fetal Spina Bifida NCT03090633 | Johns Hopkins University | N/A |
| Completed | Investigation of Parents' Anxiety Level and Health Related Quality of Life in Different Types of Physical Disa NCT04035967 | Sanko University | — |
| Completed | The Relationship Between Nocturnal Enuresis And Spina Bifida Occulta NCT03543995 | Ankara Training and Research Hospital | — |
| Completed | Medication Management Among Individuals With Neurodevelopmental Disabilities NCT03121651 | University of Michigan | N/A |
| Completed | The Impact of Community-based Wellness Programs on The Triple Aim NCT02938130 | University of Pittsburgh | — |
| Unknown | Interrater Reliability of Infant Motor Profile NCT03188107 | Abant Izzet Baysal University | — |
| Completed | Parental Perspectives of Using Toy Cars on Social Interactions of Preschool Children With Mobility Impairments NCT02682043 | University of Ulster | N/A |
| Unknown | Incidence of Pregnancies and Births With Spina Bifida in Denmark in 2008-2014 NCT02685813 | Aarhus University Hospital | — |
| Completed | A Peer E-mentoring Intervention to Improve Employment NCT02522507 | Holland Bloorview Kids Rehabilitation Hospital | N/A |
| Completed | Effects of Standing on Non-Ambulatory Children With Neuromuscular Conditions NCT02428673 | Gillette Children's Specialty Healthcare | N/A |
| Completed | Improving Genetic Counseling for Patients With Spina Bifida Using Next Generation Sequencing NCT02854150 | Rennes University Hospital | — |
| Unknown | Prospective Cohort of Transitional Urology Patients NCT03061084 | The Methodist Hospital Research Institute | — |
| Completed | Evaluating a New Knee-Ankle-Foot Brace to Improve Gait in Children With Movement Disorders NCT01961557 | National Institutes of Health Clinical Center (CC) | N/A |
| Completed | Anorectal Dysfunction in Patients Suffering From Spina Bifida : From Clinic to Neuro-epithelial Function (ANOS NCT02440984 | Rennes University Hospital | N/A |
| Completed | Urinary Markers of Detrusor Overactivity in Spina Bifida Patients NCT02852317 | Rennes University Hospital | — |
| Completed | Retrograde Colonic Irrigation to Manage Spina Bifida Functional Digestive Sequelae: a Multicenter, Prospective NCT02361450 | Rennes University Hospital | N/A |
| Terminated | Micro Ribonucleic Acid (miRNA) Markers of Hydrocephalus in Intraventricular Hemorrhage (IVH) NCT02386228 | St. Joseph's Hospital and Medical Center, Phoenix | — |
| Completed | Clinical Trial of a Serious Game for Individuals With SCI/D NCT02341950 | University of Michigan | N/A |
| Completed | Use of a Diurnal Indwelling Urethral Catheter to Improve Quality of Life NCT03573726 | Shriners Hospitals for Children | N/A |
| Withdrawn | Nerve Rerouting Treatment for Neurogenic Bladder in Spina Bifida NCT01096459 | Kenneth Peters, MD | N/A |
| Completed | Virtual Reality Based Testing of Power Wheelchair Driving Skills NCT00951509 | US Department of Veterans Affairs | — |
| Completed | Cognitive Rehabilitation in Patients With Spina Bifida NCT01302314 | Jan Stubberud | N/A |
| Completed | Sensory and Motor Proficiency For Children With Spina Bifida NCT05318677 | Pamukkale University | — |
| Terminated | Yulex Glove Prospective Study in Spina Bifida NCT01133288 | Hugo W. Moser Research Institute at Kennedy Krieger, Inc. | N/A |
| Completed | A Randomized Exercise Trial for Wheelchair Users NCT00866112 | University of Kansas | N/A |
| Completed | Prevention of Post Operative Bone Loss in Children NCT00655681 | University of New Mexico | N/A |
| Completed | Comparing Urinary Tract Infections in Children With Spina Bifida Using Two Types of Catheters for Catheterizat NCT01263392 | University of Alberta | N/A |
| Completed | Metformin in Children With Motor Deficit NCT00720161 | Universitaire Ziekenhuizen KU Leuven | N/A |
| Completed | Lumbar to Sacral Ventral Nerve Re-Routing NCT00378664 | Kenneth Peters, MD | Phase 2 |
| Completed | Coping Skills Training (CST) for Children With Chronic Health Conditions NCT00359775 | Children's Hospital and Health System Foundation, Wisconsin | Phase 2 |
| Active Not Recruiting | Psychosocial Adjustment of Adolescents With Spina Bifida NCT00891891 | Loyola University Chicago | — |
| Unknown | Study of Genetic Risk Factors for Spina Bifida and Anencephaly NCT00031122 | Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) | — |