Trials / Active Not Recruiting
Active Not RecruitingNCT07080268
Validation of a Questionnaire for Quality of Life Assessment in Patients With Transthyretin Amyloidosis.
Validation of a Questionnaire for Quality of Life Assessment in Patients With Transthyretin Amyloidosis in Argentina.
- Status
- Active Not Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 70 (estimated)
- Sponsor
- Hospital General de Niños Pedro de Elizalde · Academic / Other
- Sex
- All
- Age
- 18 Years
- Healthy volunteers
- Not accepted
Summary
Prospective study of development and validation of a questionnaire on quality of life in patients with Hereditary Amyloidosis The questionnaire development process will include 4 medical specialists experts in Transthyretin Amyloidosis (2 neurologists, 1 cardiologist, 1 physician clinical/hepathologist), 1 psychologist; 1 social worker; and 3 patients (with confirmed Hereditary amyloidosis) members of ALAPA. (Local PAG) Population and sample:
Conditions
Timeline
- Start date
- 2025-06-20
- Primary completion
- 2025-09-01
- Completion
- 2025-12-30
- First posted
- 2025-07-23
- Last updated
- 2025-07-23
Locations
1 site across 1 country: Argentina
Source: ClinicalTrials.gov record NCT07080268. Inclusion in this directory is not an endorsement.