Trials / Not Yet Recruiting
Not Yet RecruitingNCT06866652
Evaluating Dyspnea in Autoimmune Myasthenia Gravis "Why am I Short of Breath?"
- Status
- Not Yet Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 50 (estimated)
- Sponsor
- Institut de Myologie, France · Academic / Other
- Sex
- All
- Age
- 18 Years
- Healthy volunteers
- Not accepted
Summary
Individuals with MG (IwMG) experience shortness of breath that may be activity-related, occur at rest and even happen during sleep. Dyspnea is a complex, multidimensional and multifactorial symptom involving sensory perception, cognition and emotion. Identifying the cause(s) of dyspnea in MG may assist in finding therapeutic strategies, reducing discomfort, improving QoL and potentially limiting respiratory deterioration and incidence of MG crisis.
Detailed description
MYaResp is a prospective observational, cross-sectional study to evaluate dyspnea in adults with autoimmune myasthenia gravis. Study aims include to: * Describe the characteristics of dyspnea in IwMG * Understand contributing factors and factors associated with dyspnea in IwMG including the relationship between patient-reported dyspnea, disease severity and functional limitations. * Determine the most effective tests to identify the causes and contributing factors of dyspnea
Conditions
Timeline
- Start date
- 2025-12-01
- Primary completion
- 2028-06-01
- Completion
- 2028-06-01
- First posted
- 2025-03-10
- Last updated
- 2025-11-24
Locations
1 site across 1 country: France
Source: ClinicalTrials.gov record NCT06866652. Inclusion in this directory is not an endorsement.