Trials / Completed
CompletedNCT06471660
Family Caregiver Online Survey (Dementia and Swallowing Difficulties)
Influence of Swallowing Impairment on Burden Among Caregivers of Persons With Alzheimer's Disease and Related Dementias
- Status
- Completed
- Phase
- —
- Study type
- Observational
- Enrollment
- 219 (actual)
- Sponsor
- University of Oregon · Academic / Other
- Sex
- All
- Age
- 18 Years
- Healthy volunteers
- Accepted
Summary
The Family Caregiver Survey is a one-time, 30-minute, online survey for people living with and caring for a family member with dementia. The goal of this research is to explore the needs of family caregivers, specifically when it comes to managing swallowing difficulties (dysphagia).
Detailed description
This research aims to increase our understanding of dysphagia-related caregiver burden and inform the development of a comprehensive dysphagia intervention, one that promotes the health and quality of life of both the caregiver and the person with dementia. Aim 1. Quantify dysphagia's contribution to burden among family caregivers of persons with dementia across the disease trajectory to identify when may be best to intervene. Aim 2. Characterize the moderating effects of caregiver readiness and support on dysphagia-related burden and care recipient quality of life to identify what are the most appropriate intervention targets.
Conditions
- Dementia
- Dysphagia
- Dementia Alzheimers
- Dementia, Vascular
- Dementia, Mixed
- Dementia With Lewy Bodies
- Dementia Frontal
- Dementia, Mild
- Dementia Moderate
- Dementia Severe
- Parkinson Disease Dementia
- Dementia Frontotemporal
Timeline
- Start date
- 2023-11-07
- Primary completion
- 2025-07-12
- Completion
- 2025-07-14
- First posted
- 2024-06-24
- Last updated
- 2025-12-18
Locations
1 site across 1 country: United States
Source: ClinicalTrials.gov record NCT06471660. Inclusion in this directory is not an endorsement.