Trials / Recruiting
RecruitingNCT06469918
The Co-Op @ HeartWorks
- Status
- Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 500 (estimated)
- Sponsor
- HeartWorks, Inc. · Academic / Other
- Sex
- All
- Age
- 0 Years
- Healthy volunteers
- Not accepted
Summary
This protocol is a research study involving human subjects diagnosed with Congenital Heart Defects/Disease (CHD). The Co-Op @ HeartWorks is a cooperative between the research platform at HeartWorks and members of the CHD community. Individuals choosing to participate will be referred to as 'members' of the co-op. This study aims to create a database of members medical journey data to inform future clinical innovation and design of clinical trials which address the needs of the members. The knowledge generated from this study will help advance the care of CHD patients through the deliberate action of The Co-Op @ HeartWorks members. Unlike a traditional disease registry, the members of The Co-Op @ HeartWorks will actively inform and contribute to the future studies affecting their health.
Conditions
Timeline
- Start date
- 2024-01-24
- Primary completion
- 2050-01-01
- Completion
- 2050-01-01
- First posted
- 2024-06-24
- Last updated
- 2025-10-07
Locations
1 site across 1 country: United States
Source: ClinicalTrials.gov record NCT06469918. Inclusion in this directory is not an endorsement.