Clinical Trials Directory

Trials / Completed

CompletedNCT06031701

Neuro-psychosocial Teleassistance for Neuromuscular Diseases

Effects of a Neuro-psychosocial Teleassistance Programme for Children With Neuromuscular Diseases

Status
Completed
Phase
N/A
Study type
Interventional
Enrollment
35 (actual)
Sponsor
University of Deusto · Academic / Other
Sex
All
Age
7 Years – 16 Years
Healthy volunteers
Not accepted

Summary

This is a clinical trial to assess the effect of a neuropsychosocial intervention by means of telecare aimed at children and adolescents aged 7-16 years with neuromuscular diseases. The intervention is carried out in groups of 5 participants and is organised in 12 sessions: 1 session per week of 1h duration. The intervention is aimed at strengthening aspects of social cognition, self-esteem, social skills and aims at a reduction of symptomatology and a general improvement of psychological well-being.

Detailed description

Development of a neuro-psychosocial tele-assistance programme for groups of children and adolescents affected by various neuromuscular diseases, including Duchenne/Becker muscular dystrophy, limb-girdle dystrophy, etc. In this project the variables of interest and intervention include social cognition, quality of life, psychological symptomatology and coping strategies. The aim of this study is to test whether this programme improves the indicators in the mentioned variables.

Conditions

Interventions

TypeNameDescription
BEHAVIORALNeuro-psychosocial teleassistance programThe intervention is carried out in groups of 5 participants and is organised in 12 sessions: 1 session per week of 1h duration. The intervention is aimed at strengthening aspects of social cognition, self-esteem, social skills and aims at a reduction of symptomatology and a general improvement of psychological well-being.

Timeline

Start date
2021-11-02
Primary completion
2022-11-30
Completion
2023-06-30
First posted
2023-09-11
Last updated
2024-01-17

Locations

1 site across 1 country: Spain

Source: ClinicalTrials.gov record NCT06031701. Inclusion in this directory is not an endorsement.