NCT05843500

Chronic Thromboembolic Disease Registry

Chronic Thromboembolic Disease: A Prospective Registry

• Status: Recruiting
• Phase: —
• Study type: Observational
• Enrollment: 100 (estimated)
• Sponsor: University of California, San Francisco · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

The goal of this patient registry is to learn about the natural history in patients with chronic thromboembolic disease (CTD) and/or chronic thromboembolic pulmonary hypertension (CTEPH). The main question\[s\] it aims to answer are: * Long-term outcome after various types of treatment, including medication, balloon pulmonary angioplasty, and pulmonary endarterectomy * Effect of treatment on patient's quality of life and exercise tolerance Participants will be followed longitudinally to assess their health outcomes and quality of life via chart review and health quality surveys.

Conditions

• Chronic Thromboembolic Pulmonary Hypertension
• Chronic Thromboembolic Disease

Interventions

Type	Name	Description
OTHER	Survey	Patients who received medical, surgical or interventional treatment for chronic thromboembolic pulmonary hypertension will be followed and given quality of life questionnaires.

Timeline

• Start date: 2023-08-01
• Primary completion: 2028-07-01
• Completion: 2028-07-01
• First posted: 2023-05-06
• Last updated: 2025-06-12

Locations

1 site across 1 country: United States