NCT05730946

Challenges and Concerns Faced by Parents of Children With Cleft Lip and/or Palate

Understanding The Challenges and Concerns Faced by Parents of Children With Cleft Lip and/or Palate: A Qualitative Study

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 12 (actual)
• Sponsor: Ain Shams University · Academic / Other
• Sex: All
• Age: —
• Healthy volunteers: Not accepted

Summary

Cleft lip and/or palate (CLP) are the most common oro-facial congenital anomalies. These anomalies have an impact on feeding, speech and speech development, facial aesthetics \& oral health, all of which are factors that heavily impact the quality of life of CLP patients. CLP also has an effect on the families' social and psychological health. Qualitative research helps understand the perspectives of the participants by exploring the psycho-social aspects of care. Phenomenological approach is a qualitative research method that aims to borrow participants' lived experiences to better understand a specific phenomenon. Currently, there is no clear understanding of the fears, anxieties, and challenges faced by parents of CLP patients in Egypt.

Conditions

• Cleft Lip and Palate

Interventions

Type	Name	Description
DIAGNOSTIC_TEST	Interview- based questionnaire	Interview-based questionnaire by the use of an interview guide to explore and understand the Challenges faced in the past and the concerns for the future experienced by parents of CLP patients.

Timeline

• Start date: 2022-07-07
• Primary completion: 2023-07-30
• Completion: 2023-07-30
• First posted: 2023-02-16
• Last updated: 2023-09-06

Locations

1 site across 1 country: Egypt