NCT05696769

Tourette Discrimination (TD) Stigma Scale

Measuring Stigmatization in Chronic Tic Disorders: Development and Validation of the Tourette Discrimination-Stigmatization (TD-STIGMA) Scale

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 43 (actual)
• Sponsor: Wake Forest University Health Sciences · Academic / Other
• Sex: All
• Age: 8 Years
• Healthy volunteers: Not accepted

Summary

The goal of this qualitative study is to understand the challenges of stigmatization and discrimination in children and young adults with Chronic Tic Disorders (CTD), including Tourette Syndrome. Measuring and understanding how stigma affects those with CTD will help inform future work.

Detailed description

This study will utilize a phased approach, where (1) Narrative and thematic content data will be obtained through in-depth qualitative interviews of CTD stakeholders. (2) Based on these results, a novel scale will be developed through the Delphi Method with CTD stakeholders. (3) Preliminary analyses of the scale's psychometric properties.

Conditions

• Tourette Syndrome
• Tourette Syndrome in Children
• Tourette Syndrome in Adolescence
• Tic Disorder, Childhood
• Tics

Timeline

• Start date: 2023-03-04
• Primary completion: 2024-06-27
• Completion: 2024-06-27
• First posted: 2023-01-25
• Last updated: 2025-09-10

Locations

1 site across 1 country: United States