Trials / Recruiting
RecruitingNCT05119387
Genetic Study of Amyotrophic Lateral Sclerosis in Norway
Genetisk Studie av Amyotrofisk Lateral Sklerose (ALS)
- Status
- Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 1,200 (estimated)
- Sponsor
- Sykehuset Telemark · Other Government
- Sex
- All
- Age
- 16 Years – 100 Years
- Healthy volunteers
- Not accepted
Summary
The purpose of this study is to explore the genetic causes relevant for ALS development in Norway.
Detailed description
After being informed about the study and potential risks, all patients giving written informed consent will be asked to complete a small questionnaire regarding family history and have a blood sample withdrawn. Blood samples, questionnaires, clinical information and signed consent is send to Department of Medical Genetics, Telemark Hospital Trust were the genetic analysis is performed successively throughout the recruitment period. Patients can choose to have their genetic results returned in a diagnostic setting.
Conditions
Interventions
| Type | Name | Description |
|---|---|---|
| OTHER | Observation | Observation of genetic characteristics |
Timeline
- Start date
- 2019-08-01
- Primary completion
- 2030-12-31
- Completion
- 2035-12-31
- First posted
- 2021-11-15
- Last updated
- 2025-01-08
Locations
17 sites across 1 country: Norway
Source: ClinicalTrials.gov record NCT05119387. Inclusion in this directory is not an endorsement.