NCT04631965

Healthcare Transition of Adolescents With Chronic Health Conditions

Bridge: an International Longitudinal Study of Healthcare Transition of Adolescents With Severe Chronic Health Conditions

• Status: Unknown
• Phase: —
• Study type: Observational
• Enrollment: 503 (actual)
• Sponsor: University of Helsinki · Academic / Other
• Sex: All
• Age: 15 Years – 20 Years
• Healthy volunteers: Not accepted

Summary

At least 12% of children have a chronic disease that requires regular medical follow-up after patients reach legal maturity. This international study aims to provide prospective evidence for improving health and wellbeing outcomes in this population. The primary hypothesis is that transition readiness will be more strongly associated with adherence to follow-up, fewer emergency visits and continued education than disease severity or chronological age. The secondary hypothesis is that positive experiences of care will be associated with lower levels of anxiety. Positive care experiences and low anxiety will predict better health-related quality of life during the transition period. A cohort of 504 young patients will be followed for three years. Patients have been recruited from pediatric hospitals 0-12 months prior to the transfer of care and follow-up will be completed after the patients have been followed for two years in adult healthcare.

Conditions

• Transition
• Diabetes
• Kidney Diseases
• Liver Diseases
• Inflammatory Bowel Diseases
• Rheumatic Diseases
• Congenital Heart Disease
• Neurologic Disorder

Interventions

Type	Name	Description
BEHAVIORAL	Transition support service	The hospital-wide transition support service provides systematic care coordination for young patients prior to the transfer of care

Timeline

• Start date: 2017-09-01
• Primary completion: 2021-12-01
• Completion: 2023-12-01
• First posted: 2020-11-17
• Last updated: 2021-12-21

Locations

2 sites across 2 countries: Australia, Finland