Trials / Recruiting
RecruitingNCT03489278
Clinical Procedures to Support Research in ALS
Clinical Procedures to Support Research in ALS (CAPTURE-ALS)
- Status
- Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 1,200 (estimated)
- Sponsor
- University of Miami · Academic / Other
- Sex
- All
- Age
- 18 Years
- Healthy volunteers
- Not accepted
Summary
The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.
Detailed description
The study will consent patients with ALS or related disorders that are receiving care at a clinical center in the CReATe consortium that uses Epic as its electronic health record (EHR) system. The study aims to systematically gather a clinical dataset through the EHR using a standardized approach to characterize the natural history of ALS and related diseases.
Conditions
- Amyotrophic Lateral Sclerosis
- ALS-Frontotemporal Dementia
- Primary Lateral Sclerosis
- Progressive Muscular Atrophy
Timeline
- Start date
- 2018-02-15
- Primary completion
- 2026-06-01
- Completion
- 2027-06-01
- First posted
- 2018-04-05
- Last updated
- 2026-03-23
Locations
11 sites across 1 country: United States
Source: ClinicalTrials.gov record NCT03489278. Inclusion in this directory is not an endorsement.