Trials / Completed
CompletedNCT03410290
Journey of Patients With Vasculitis From First Symptom to Diagnosis
The Journey of Patients With Vasculitis From First Symptom to Diagnosis
- Status
- Completed
- Phase
- —
- Study type
- Observational
- Enrollment
- 456 (actual)
- Sponsor
- University of Pennsylvania · Academic / Other
- Sex
- All
- Age
- —
- Healthy volunteers
- Not accepted
Summary
This study seeks to understand the journey that patients eventually are diagnosed with vasculitis experience in the period prior to their formal diagnosis by a healthcare provider. Data elements of interest include average time from the onset of the first symptoms to the time a diagnosis of vasculitis is confirmed. Other aims include identifying factors associated with the time to diagnosis. These factors will be divided into: a) intrinsic factors, or so-called "patient-related factors", such as the type of vasculitis symptoms, patient demographics, socioeconomic status, patients' beliefs regarding the etiology of their symptoms, and other factors, and b) extrinsic factors, or "professional/health system factors", such as healthcare access, referral patterns, testing patterns, and other factors. Understanding such factors can guide future efforts to shorten delays in diagnosis and thereby improve outcomes. All analyses will be done for the population of patients with vasculitis as a whole and by individual types of vasculitis.
Conditions
- Vasculitis
- Systemic Vasculitis
- Behcet's Disease
- CNS Vasculitis
- Cryoglobulinemic Vasculitis
- Eosinophilic Granulomatous Vasculitis
- Temporal Arteritis
- Giant Cell Arteritis
- Granulomatosis With Polyangiitis
- Wegener Granulomatosis
- Henoch Schonlein Purpura
- IgA Vasculitis
- Microscopic Polyangiitis
- Polyarteritis Nodosa
- Takayasu Arteritis
- Urticarial Vasculitis
Interventions
| Type | Name | Description |
|---|---|---|
| OTHER | Online Questionnaire | The online questionnaire includes questions about factors that impacted a patients diagnosis of vasculitis. |
Timeline
- Start date
- 2018-01-11
- Primary completion
- 2018-05-21
- Completion
- 2018-05-21
- First posted
- 2018-01-25
- Last updated
- 2018-06-06
Locations
1 site across 1 country: United States
Source: ClinicalTrials.gov record NCT03410290. Inclusion in this directory is not an endorsement.