Trials / Completed
CompletedNCT03292887
Hunter Outcome Survey (HOS)
Hunter Outcome Survey: A Global, Multi-Center, Long-Term, Observational Registry of Patients With Hunter Syndrome (Mucopolysaccharidosis Type II, MPS II)
- Status
- Completed
- Phase
- —
- Study type
- Observational
- Enrollment
- 1,443 (actual)
- Sponsor
- Shire · Industry
- Sex
- All
- Age
- —
- Healthy volunteers
- Not accepted
Summary
The purpose of this study is to collect data that will increase understanding of Hunter syndrome. The data from HOS may provide guidance to healthcare professionals about disease treatment options.
Conditions
Timeline
- Start date
- 2005-10-03
- Primary completion
- 2023-02-16
- Completion
- 2023-02-16
- First posted
- 2017-09-26
- Last updated
- 2024-10-28
Locations
1 site across 1 country: United States
Source: ClinicalTrials.gov record NCT03292887. Inclusion in this directory is not an endorsement.