Clinical Trials Directory

Trials / Completed

CompletedNCT03070119

Long-Term Evaluation of BIIB067 (Tofersen)

An Extension Study to Assess the Long-Term Safety, Tolerability, Pharmacokinetics, and Effect on Disease Progression of BIIB067 Administered to Previously Treated Adults With Amyotrophic Lateral Sclerosis Caused by Superoxide Dismutase 1 Mutation

Status
Completed
Phase
Phase 3
Study type
Interventional
Enrollment
139 (actual)
Sponsor
Biogen · Industry
Sex
All
Age
18 Years
Healthy volunteers
Not accepted

Summary

The primary objective of the study is to evaluate the long-term safety and tolerability of BIIB067 (tofersen) in participants with amyotrophic lateral sclerosis (ALS) and confirmed superoxide dismutase 1 (SOD1) mutation. The secondary objectives are to evaluate the pharmacokinetic (PK), pharmacodynamic (PD), biomarker effects, and efficacy of BIIB067 administered to participants with ALS and a confirmed SOD1 mutation.

Conditions

Interventions

TypeNameDescription
DRUGTofersenParticipants will receive a loading dose regimen followed by maintenance dosing.

Timeline

Start date
2017-03-08
Primary completion
2024-08-12
Completion
2024-08-12
First posted
2017-03-03
Last updated
2025-08-29
Results posted
2025-08-29

Locations

30 sites across 9 countries: United States, Belgium, Canada, Denmark, France, Germany, Italy, Japan, United Kingdom

Regulatory

Source: ClinicalTrials.gov record NCT03070119. Inclusion in this directory is not an endorsement.