NCT01900288

Home Parenteral Nutrition (HPN) Families' Mobile Distance Connections to Care Research

Mobile Technologies Assisting Patients & Family Caregivers in Healthy Living

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 121 (actual)
• Sponsor: University of Kansas Medical Center · Academic / Other
• Sex: All
• Age: 13 Years
• Healthy volunteers: Not accepted

Summary

The purpose of this study is to test Mobile Technologies in Assisting Patients \& Family Caregivers in Healthy Living and complex home care by connecting to information and professionals from a distance.

Detailed description

HPN (Home Parenteral Nutrition) families with TPN (Total Parenteral Nutrition) users are typically geographically distant from one another (peers) as well as professional providers. Real-time mobile access to health related information, peer and professional support will be tested in this study.

Conditions

• Short Bowel Syndrome
• Malabsorption
• Malnutrition

Interventions

Type	Name	Description
BEHAVIORAL	HPN Group Clinic Appointments using Mobile Devices (experimental)	Visual meetings with geographically distant professionals and peers using a mobile device (iPad mini).
BEHAVIORAL	Mobile Device Access (placebo)	Use of iPad mini unrelated to the intervention until last contact with one connection to professionals for comparison.

Timeline

• Start date: 2012-08-01
• Primary completion: 2015-12-01
• Completion: 2016-12-23
• First posted: 2013-07-16
• Last updated: 2017-01-27

Locations

1 site across 1 country: United States