NCT01772602

The National Amyotrophic Lateral Sclerosis Registry

• Status: Recruiting
• Phase: —
• Study type: Observational
• Enrollment: 30,000 (estimated)
• Sponsor: Centers for Disease Control and Prevention · Federal
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

The purpose of this registry is to (A) better describe the incidence and prevalence of Amyotrophic Lateral Sclerosis (ALS) in the United States;(B) examine appropriate factors, such as environmental and occupational, that may be associated with the disease; (C) better outline key demographic factors (such as age, race or ethnicity, gender, and family history of individuals who are diagnosed with the disease) associated with the disease; and (D) better examine the connection between ALS and other motor neuron disorders that can be confused with ALS, misdiagnosed as ALS, and in some cases progress to ALS.

Detailed description

The National ALS Registry's Research Notification System allows person with ALS to participate in clinical trials.

Conditions

• Amyotrophic Lateral Sclerosis

Timeline

• Start date: 2010-10-01
• Primary completion: 2040-12-01
• Completion: 2040-12-01
• First posted: 2013-01-21
• Last updated: 2025-04-09

Locations

1 site across 1 country: United States