Trials / Active Not Recruiting
Active Not RecruitingNCT00639301
Retinoblastoma Survivor Study: Assessment of General Health and Quality of Life
- Status
- Active Not Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 473 (actual)
- Sponsor
- Memorial Sloan Kettering Cancer Center · Academic / Other
- Sex
- All
- Age
- 18 Years
- Healthy volunteers
- Not accepted
Summary
The purpose of this study is to find out about the quality of life and health in a group of adults who had retinoblastoma when they were children. By quality of life, we mean how you are feeling about being satisfied with things in your life, including your physical health, your emotional health, and your ability to carry out daily activities. We hope that this information will help us provide better care to future children with retinoblastoma and better follow-up care for survivors of retinoblastoma.
Conditions
Interventions
| Type | Name | Description |
|---|---|---|
| BEHAVIORAL | Questionnaires | The survey will be administered by mail or telephone interview, based upon the participant preference. The survey has been adapted from the 2008 questionnaire being administered through the CCSS (11); it has been supplemented with questions addressing areas of interest specific to the retinoblastoma survivor population (eg, validated instruments that assess visual impairment). |
Timeline
- Start date
- 2008-03-11
- Primary completion
- 2027-03-01
- Completion
- 2027-03-01
- First posted
- 2008-03-20
- Last updated
- 2026-02-02
Locations
1 site across 1 country: United States
Source: ClinicalTrials.gov record NCT00639301. Inclusion in this directory is not an endorsement.