NCT00582296

Multi-Organ Screening Recommendations in Patients With Lynch Syndrome

Adherence to Comprehensive, Multi-Organ Screening Recommendations in Patients With Lynch Syndrome

• Status: Active Not Recruiting
• Phase: —
• Study type: Observational
• Enrollment: 1,530 (actual)
• Sponsor: Memorial Sloan Kettering Cancer Center · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

The purpose of this study is to examine how people with a family history of colon cancer and other related cancers respond to recommendations for cancer screening after genetic counseling. The purpose of your participation would be to help us learn more about whether people with a personal and/or family history of colorectal cancer and other cancers follow cancer screening recommendations.

Conditions

• Lynch Syndrome

Interventions

Type	Name	Description
BEHAVIORAL	questionnaires, telephone interview, optional blood drawn	Initial CGS Visit (All Prospective Participants)Clinical assessment (screening, family \& personal history of CA, surgeries) 6 Month Follow-Up Phone Interview (Prospective) Follow-Up Questionnaire (prospective and retrospective) Retrospective Initial Interview Participants may also donate an additional blood, serum, saliva, urine, or stool sample for research, (in addition to the blood drawn for clinical testing) or for the sole purpose of research testing (in absence of clinical testing or prior external testing).
BEHAVIORAL	questionnaires, telephone interview and optional blood drawn	Initial CGS Visit (All Prospective Participants)Clinical assessment (screening, family \& personal history of CA, surgeries) 6 Month Follow-Up Phone Interview (Prospective) Follow-Up Questionnaire (prospective and retrospective) Retrospective Initial Interview Participants may also donate an additional blood, serum, saliva, urine, or stool sample for research, (in addition to the blood drawn for clinical testing) or for the sole purpose of research testing (in absence of clinical testing or prior external testing).

Timeline

• Start date: 2004-12-01
• Primary completion: 2026-12-01
• Completion: 2026-12-01
• First posted: 2007-12-28
• Last updated: 2026-01-07

Locations

8 sites across 1 country: United States