Clinical Trials Directory

Trials / Completed

CompletedNCT00483379

High Dose or High Dose Frequency Study of Alglucosidase Alfa

An Exploratory, Open-Label Study of the Safety and Efficacy of High Dose or High Dosing Frequency Alglucosidase Alfa Treatment in Patients With Pompe Disease Who Do Not Have an Optimal Response to the Standard Dose Regimen

Status
Completed
Phase
Phase 4
Study type
Interventional
Enrollment
13 (actual)
Sponsor
Genzyme, a Sanofi Company · Industry
Sex
All
Age
6 Months
Healthy volunteers
Not accepted

Summary

Pompe disease (also known as glycogen storage disease Type II) is caused by a deficiency of a critical enzyme in the body called acid alpha-glucosidase (GAA). Normally, GAA is used by the body's cells to break down glycogen (a stored form of sugar) within specialized structures called lysosomes. In patients with Pompe disease, an excessive amount of glycogen accumulates and is stored in various tissues, especially heart and skeletal muscle, which prevents their normal function. The objective of this exploratory study is to evaluate the safety and efficacy of alternative dosing regimens of alglucosidase alfa in patients with Pompe disease who have not demonstrated an optimal response to the standard dosing regimen of 20 mg/kg every other week after a minimum of 6 months treatment immediately prior to study entry.

Conditions

Interventions

TypeNameDescription
BIOLOGICALalglucosidase alfaintravenous infusion

Timeline

Start date
2007-05-01
Primary completion
2009-12-01
Completion
2010-07-01
First posted
2007-06-07
Last updated
2014-03-07
Results posted
2011-04-22

Locations

11 sites across 3 countries: United States, Australia, Canada

Source: ClinicalTrials.gov record NCT00483379. Inclusion in this directory is not an endorsement.