NCT07412002

Quality of End-of-Life Care for Children With Cancer

Quality of End-of-Life Care for Children With Cancer: A COG Groupwide Observational Study

• Status: Not Yet Recruiting
• Phase: —
• Study type: Observational
• Enrollment: 1,190 (estimated)
• Sponsor: Children's Oncology Group · Network
• Sex: All
• Age: 18 Years
• Healthy volunteers: Accepted

Summary

This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end of life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low quality end of life care as well as recommendations for potential future interventions.

Detailed description

PRIMARY OBJECTIVE: I. Examine the role of access to care, patient/family healthcare interactions, and stress in variation in quality of end-of-life (EOL) care. OUTLINE: This is an observational study. PART 1: The medical records of deceased patients are reviewed on study. PART 2: Bereaved parents complete a survey and may participate in an interview on study.

Conditions

• Childhood Hematopoietic and Lymphatic System Neoplasm
• Childhood Malignant Solid Neoplasm

Interventions

Type	Name	Description
OTHER	Non-Interventional Study	Non-interventional study

Timeline

• Start date: 2026-09-21
• Primary completion: 2031-01-31
• Completion: 2031-01-31
• First posted: 2026-02-17
• Last updated: 2026-04-13