NCT07251738

Understanding the Lived Experience and Bereavement of Caregivers of People With Alzheimer's Disease

• Status: Not Yet Recruiting
• Phase: —
• Study type: Observational
• Enrollment: 66 (estimated)
• Sponsor: Universidad Rey Juan Carlos · Academic / Other
• Sex: All
• Age: —
• Healthy volunteers: Accepted

Summary

The main objective of this study is to explore the lived experience of caregivers and family members of people with Alzheimer's disease (AD), from the beginning of caregiving through the bereavement process following the patient's death. Using a mixed-methods design, qualitative data will be collected through in-depth interviews and combined with quantitative data obtained from standardized scales. The results will aim to determine whether prolonged caregiving significantly affects the caregiver's or family member's personal, emotional, and occupational well-being, as well as whether it leads to a reorganization of activities of daily living (ADL), an increased perception of burden, and/or a decreased quality of life. The study will also examine the presence of positive adaptation experiences.

Conditions

• Alzheimer Disease (AD)
• Occupational Therapy
• Family Caregivers

Interventions

Type	Name	Description
OTHER	Assessment of occupational balance, role performance, caregiving burden, and quality of life among carers or family members of individuals with Alzheimer's disease (AD).	Assessment of occupational balance, role performance, caregiving burden, and quality of life among carers or family members of individuals with Alzheimer's disease (AD).

Timeline

• Start date: 2025-12-01
• Primary completion: 2026-05-31
• Completion: 2026-07-31
• First posted: 2025-11-26
• Last updated: 2025-11-26