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Active Not RecruitingNCT07143656

Amyotrophic Lateral Sclerosis: A Multicenter Retrospective Observational Registry

Natural History and Biomarker Correlation Study in Amyotrophic Lateral Sclerosis: A Multicenter Retrospective Observational Registry

Status
Active Not Recruiting
Phase
Study type
Observational
Enrollment
36 (actual)
Sponsor
Biocells Medical · Industry
Sex
All
Age
18 Years – 70 Years
Healthy volunteers
Not accepted

Summary

This retrospective observational study will analyze de-identified clinical data from patients with amyotrophic lateral sclerosis (ALS) collected at multiple centers over 7 years. The primary objective is to describe disease progression using the ALS Functional Rating Scale-Revised (ALSFRS-R). Secondary objectives include evaluating survival, ventilatory decline, and correlations between available biomarkers (e.g., neurofilament light chain, cytokines) and disease trajectory. No new interventions or patient contact will occur.

Conditions

Interventions

TypeNameDescription
BIOLOGICALImaging and Clinical ReportsInclusion of existing imaging data (MRI, EMG reports) and standard clinical documentation, where available.

Timeline

Start date
2021-05-13
Primary completion
2028-08-13
Completion
2028-09-01
First posted
2025-08-27
Last updated
2025-08-28

Locations

1 site across 1 country: Poland

Regulatory

Source: ClinicalTrials.gov record NCT07143656. Inclusion in this directory is not an endorsement.