NCT07070726

UNTOLD Ovarian Cancer Unmet Needs Survey

UNderstanding The Experience of Ovarian Cancer Life After Diagnosis (UNTOLD) Study

• Status: Recruiting
• Phase: —
• Study type: Observational
• Enrollment: 2,000 (estimated)
• Sponsor: Masonic Cancer Center, University of Minnesota · Academic / Other
• Sex: Female
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

The goal of this study is to comprehensively measure ongoing concerns and unmet needs of individuals living with ovarian cancer. To accomplish this, the UNderstanding The experience of Ovarian cancer - Life after Diagnosis (UNTOLD) study will be conducted using a mixed-methods approach. Ovarian cancer survivors will be enrolled to participate in UNTOLD to complete a one-time survey regarding their experiences. Up to 40 survivors will be subsequently identified to complete a follow-up interview. To ensure these sample sizes, along with a representative sample, a combined recruitment strategy will be employed using the California Cancer Registry (population-based) and recruitment through ovarian cancer advocacy groups.

Conditions

• Ovarian Cancer

Timeline

• Start date: 2025-07-10
• Primary completion: 2026-06-30
• Completion: 2028-01-01
• First posted: 2025-07-17
• Last updated: 2025-07-20

Locations

1 site across 1 country: United States