NCT07060703

Clinical and Paraclinical Characterization of Osseous Anomalies of the Long Bones of Patients With Klippel Trénaunay Syndrome

• Status: Active Not Recruiting
• Phase: N/A
• Study type: Interventional
• Enrollment: 15 (estimated)
• Sponsor: University Hospital, Grenoble · Academic / Other
• Sex: All
• Age: 7 Years
• Healthy volunteers: Not accepted

Summary

Clinical and paraclinical characterization of osseous anomalies of the long bones of patients with Klippel Trénaunay syndrome

Detailed description

The objective is to better characterize bone damage in KTS as well as their risks in the shorter or medium term (potentially higher risks of long bone fractures, hemorrhagic risks in the event of a long bone fracture, osteoarthritis risks or risk osteoporosis) as well as the need for rheumatological care in the care pathway.

Conditions

• Radiological Bone Phenotype Description of Patients With KTS ( Klippel-Trénaunay Syndrome )

Interventions

Type	Name	Description
DIAGNOSTIC_TEST	Osteodensitometry	exploration of long bones using non-invasive Guided Wave Velocity (GWV) technology. comparison of ultrasound parameters (cortical thickness and porosity, among others) with BMD values (spine, right and left femoral necks) obtained by DXA. \[Time Frame: 20 MIN\]

Timeline

• Start date: 2024-09-12
• Primary completion: 2024-09-15
• Completion: 2026-10-01
• First posted: 2025-07-11
• Last updated: 2025-07-11

Locations

1 site across 1 country: France