NCT06998355

BE.Amycon Registry UZ Leuven

BE.Amycon Amyloidosis Data Registry UZ Leuven

• Status: Suspended
• Phase: —
• Study type: Observational
• Enrollment: 550 (estimated)
• Sponsor: Universitaire Ziekenhuizen KU Leuven · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

The goal of this observational study is to establish database with (limited) personal and health data of patients diagnosed with amyloidosis (any subtype) in order to get better insights on the disease presentation, disease evolution pattern, treatment plans and responses and survival.

Detailed description

With the support of VIB Grand Challenges Program, this project aims to establish the BElgian AMYloidosis CONsortium (BE.AMYCON) by joining forces of VIB researchers, a state-of-the-art diagnostic platform, and clinicians from various disciplines and different institutes. Such a consortium will address patient needs and improve outcomes on many levels. In this context, a registry of clinical data is a requirement for both improvement of diagnostics as well as fundamental research purposes.

Conditions

• Amyloidosis

Interventions

Type	Name	Description
OTHER	Registry	observational data collection

Timeline

• Start date: 2025-09-01
• Primary completion: 2027-12-31
• Completion: 2028-06-01
• First posted: 2025-05-31
• Last updated: 2025-08-28

Locations

1 site across 1 country: Belgium