Trials / Completed
CompletedNCT06663163
The Association Between Fever and CDKL5 Deficiency Disorder: a Nationwide Survey
- Status
- Completed
- Phase
- —
- Study type
- Observational
- Enrollment
- 131 (actual)
- Sponsor
- Xuanwu Hospital, Beijing · Academic / Other
- Sex
- All
- Age
- —
- Healthy volunteers
- Not accepted
Summary
The primary objective of this research is to study the effects of fever on seizure activity in patients with CDKL5 deficiency disorder
Detailed description
The survey aimed to gather information on seizure during and after fever and hot temperature bath therapy from families of children diagnosed with CDKL5 deficiency disorder through the WeChat group. It is expected to to develop new intervention strategies to reduce seizure frequency, improve patient quality of life, and ultimately address the therapeutic challenges faced by the global CDKL5 patient community.
Conditions
Interventions
| Type | Name | Description |
|---|---|---|
| OTHER | Observation | This study was an observational study without intervention |
Timeline
- Start date
- 2024-10-29
- Primary completion
- 2024-12-15
- Completion
- 2024-12-31
- First posted
- 2024-10-29
- Last updated
- 2026-04-14
Locations
1 site across 1 country: China
Source: ClinicalTrials.gov record NCT06663163. Inclusion in this directory is not an endorsement.