Trials / Recruiting
RecruitingNCT06617741
Myasthenia Gravis Foundation of America Global MG Patient Registry
- Status
- Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 3,800 (estimated)
- Sponsor
- Myasthenia Gravis Foundation of America · Academic / Other
- Sex
- All
- Age
- 18 Years
- Healthy volunteers
- Not accepted
Summary
The goal of this observational study is to learn about the experiences of people living with Myasthenia Gravis (MG) in the United States. The main questions it aims to answer are: * How and when are people with MG diagnosed? * What are the most common symptoms associated with MG? * What treatments are being used to treat MG? * What are the impacts of MG on activities of daily living, employment and quality of life? * What are the experiences with exacerbation, hospitalization and healthcare access for people with MG? Participants will answer a survey to enroll in the study, and be invited to fill out an update survey twice a year.
Detailed description
This is a longitudinal, observational, patient reported registry.
Conditions
- Myasthaenia Gravis
- Myasthenia
- Myasthenia Gravis Associated with Thymoma
- Myasthenia Gravis Crisis
- Myasthenia Gravis Exacerbations
- Myasthenia Gravis Generalised
- Myasthenia Gravis with Exacerbation (Disorder)
- Myasthenia Gravis, Adult Form
- Myasthenia Gravis, Generalized
- Myasthenia Gravis, Ocular
- Myasthenia Gravis, Thymectomy
- Myasthenia Gravis
- Myasthenia Gravis, MuSK
Timeline
- Start date
- 2013-10-12
- Primary completion
- 2029-09-19
- Completion
- 2029-09-19
- First posted
- 2024-09-27
- Last updated
- 2024-09-27
Locations
1 site across 1 country: United States
Source: ClinicalTrials.gov record NCT06617741. Inclusion in this directory is not an endorsement.