NCT06526637

User Testing of an End of Life Medication Support Intervention for Lay Carers (Palliate).

User Testing of the Palliate Intervention, Supporting Lay Carers to Prepare and Administer Anticipatory Medications to Loved Ones at Home at the End of Life.

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 30 (actual)
• Sponsor: Imperial College London · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Accepted

Summary

The aim of this study is to evaluate the acceptability, safety and efficiency of the Palliate intervention. The Palliate intervention is a nurse-led process that includes training and documentation materials to support lay carers in administering top up medications to loved ones at the end of life at home. The Palliate intervention was designed based on the CARiAD\* intervention using user testing and has been successfully piloted and rolled out in Central and North West London National Health Service (NHS) Foundation Trust. \*CARer-ADministration of as-needed sub-cutaneous medication for breakthrough symptoms in homebased dying patients.

Conditions

• End of Life
• Support, Family

Interventions

Type	Name	Description
OTHER	Paper Package	Paper based (as per current practice at Central and North West London (CNWL) NHS Foundation Trust) version of Palliate.
OTHER	V1 + Preparation Sheet	Paper based version of Palliate plus a preparation sheet, that provides visual cues as to what equipment is required for the preparation and administration of the medications.
OTHER	V2 + Video Training	Hybrid - paper based materials, preparation sheet, and video instructions available via an interactive portable document format (PDF) version of the training materials.

Timeline

• Start date: 2024-09-26
• Primary completion: 2025-11-01
• Completion: 2025-11-01
• First posted: 2024-07-30
• Last updated: 2026-03-27

Locations

1 site across 1 country: United Kingdom