Trials / Recruiting
RecruitingNCT06475898
Longitudinal Endpoint Assessment of Disease Burden in HD
- Status
- Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 600 (estimated)
- Sponsor
- Huntington Study Group · Network
- Sex
- All
- Age
- 18 Years
- Healthy volunteers
- Not accepted
Summary
LEAD-HD is intended to collect and analyze self-reported health information from individuals with Huntington Disease (HD) or prodromal HD participating in a 24-month longitudinal natural history study using remote technologies.
Detailed description
The LEAD-HD study will be offered via HSG's online observational research platform called myHDstory®. This direct to patient study will collect and analyze self-reported health information from individuals with Huntington Disease (HD) or prodromal HD in a 24-month longitudinal natural history study that participants complete at any time and with their own electronic device.
Conditions
Timeline
- Start date
- 2024-06-25
- Primary completion
- 2026-12-01
- Completion
- 2026-12-01
- First posted
- 2024-06-26
- Last updated
- 2025-09-10
Locations
1 site across 1 country: United States
Source: ClinicalTrials.gov record NCT06475898. Inclusion in this directory is not an endorsement.