NCT06474767

Using Parent Engagement to Improve the Wellbeing of Black Premature Infants With Chronic Lung Disease

Addressing Health Disparities in Chronic Lung Disease for Preterm Infants Through Parent Engagement

• Status: Not Yet Recruiting
• Phase: N/A
• Study type: Interventional
• Enrollment: 30 (estimated)
• Sponsor: Johns Hopkins University · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Accepted

Summary

The goal of this pilot study is to test the feasibility and acceptability of a collaborative goal setting intervention to improve parent engagement of Black preterm infants with chronic lung disease in primary care. Preliminary impact on child and parent outcomes will also be explored. The main questions it aims to answer are: 1) Will parents complete a pre-visit questionnaire that asks about goals for the child? 2) Does use of the pre-visit questionnaire help parents to achieve self-identified goals? Participants will fill out a pre-visit questionnaire prior to the child's well visit. The participants will then complete two surveys after the visit (1 week and 2 months after).

Conditions

• Chronic Lung Disease

Interventions

Type	Name	Description
BEHAVIORAL	P-CGS (Pediatric Collaborative Goal Setting)	Electronic questionnaire sent to participants ahead of a pediatric primary care well child visit, assessing goals for themselves and the child's health with prompt to share with providers during visit

Timeline

• Start date: 2026-07-01
• Primary completion: 2027-06-30
• Completion: 2027-06-30
• First posted: 2024-06-26
• Last updated: 2025-09-16