Trials / Recruiting
RecruitingNCT06466291
Spanish Wilson Disease Registry
Registro de Enfermedad de Wilson en España
- Status
- Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 600 (estimated)
- Sponsor
- Asociación Española para el Estudio del Hígado · Academic / Other
- Sex
- All
- Age
- 18 Years
- Healthy volunteers
- Not accepted
Summary
The main objective and purpose of the Registry is to know the current status of Wilson Disease in Spain. As secondary objectives, the prevalence and incidence of the disease will be analysed. Likewise, the analysis aims to define future areas of interest in its pathogenesis, diagnosis, natural history, follow-up, prognosis and treatment. Improving knowledge at a national level can help to design screening strategies and improve diagnostic circuits.
Detailed description
Retrospective and prospective study.
Conditions
Timeline
- Start date
- 2021-12-02
- Primary completion
- 2030-12-01
- Completion
- 2030-12-01
- First posted
- 2024-06-20
- Last updated
- 2024-06-20
Locations
1 site across 1 country: Spain
Source: ClinicalTrials.gov record NCT06466291. Inclusion in this directory is not an endorsement.