Trials / Unknown
UnknownNCT06346106
The Diagnostic Experience of Male Rett Syndrome
- Status
- Unknown
- Phase
- —
- Study type
- Observational
- Enrollment
- 80 (estimated)
- Sponsor
- Children's Hospital Colorado · Academic / Other
- Sex
- Male
- Age
- 0 Years – 100 Years
- Healthy volunteers
- —
Summary
The Diagnostic Experience of Male Rett Syndrome collects information on the lived experiences of parents or caregivers to boys with Rett Syndrome. Key information examined includes the process of getting a male Rett syndrome diagnosis, your son's systems of care, and your priorities for his health needs. Enrolled participants will complete an online survey with questions about having a son with Rett Syndrome. The Diagnostic Experience of Male Rett Syndrome study is available to parents or caregivers to boys (alive or passed) with Rett Syndrome. Compensation is not provided.
Conditions
Interventions
| Type | Name | Description |
|---|---|---|
| GENETIC | Male Rett | This study does not have an intervention. Participants of this study must be parents or caregivers to boys with Rett syndrome. |
Timeline
- Start date
- 2023-05-24
- Primary completion
- 2024-04-30
- Completion
- 2024-04-30
- First posted
- 2024-04-03
- Last updated
- 2024-04-03
Locations
1 site across 1 country: United States
Source: ClinicalTrials.gov record NCT06346106. Inclusion in this directory is not an endorsement.