NCT06247215

Building Resilience for Advance Care Planning (ACP) in Chinese Americans

Development of a Culturally Tailored Resilience-Building Intervention to Facilitate Advance Care Planning Discussions Between Chinese American Patients and Their Family Caregivers

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 125 (actual)
• Sponsor: University of Illinois at Chicago · Academic / Other
• Sex: All
• Age: 18 Years – 90 Years
• Healthy volunteers: Accepted

Summary

The goal of this observational study is to learn about how Chinese Americans engage in advance care planning (ACP) discussions with their family caregivers. The main questions it aims to answer are: 1. How do religious leaders discuss advance care planning and death-related topics with Chinese Americans who are diagnosed with cancer or heart disease in Chicago? 2. Are Chinese Americans living in Chicago ready to participate in ACP discussions with their family? 3. What kind of support and resources are required to engage in end-of-life care discussions among Chinese Americans/immigrants living in Chicago? 4. What do Chinese Americans with cancer, high blood pressure, or heart disease and their family members think about an ACP pamphlet made for Chinese Americans? Participants will share their experience either through interviews or a survey.

Detailed description

The overall objective of this pilot study is to develop a culturally tailored resilience-building intervention for Chinese Americans with cancer or heart disease in Chicago. A qualitative analysis of semi-structured interviews will be conducted to identify how religious leaders addressed death-related topics with Chinese Americans with cancer, heart disease, or hypertension in Chicago. In addition, a mixed-method study using surveys and focus groups to understand the readiness, support, and resources of Chinese Americans living in Chicago to participate in ACP discussions with their family. Finally, a usability study will ask Chinese Americans with cancer, high blood pressure, or heart disease, and their family members, to share feedback on an ACP pamphlet designed for Chinese Americans.

Conditions

• Advance Care Planning

Interventions

Type	Name	Description
OTHER	Religious leaders	Religious leaders who have experience providing pastoral or spiritual care to Chinese Americans living in Chicago
OTHER	Chinese Americans	Chinese Americans living in Chicago.
OTHER	Chinese Americans with end-of-life care discussions	Chinese Americans who have experience discussing end-of-life care decisions with others.
OTHER	Chinese Americans with chronic diseases	Chinese Americans who are diagnosed with cancer, hypertension, or heart disease and their family caregivers

Timeline

• Start date: 2023-11-08
• Primary completion: 2025-12-18
• Completion: 2025-12-18
• First posted: 2024-02-07
• Last updated: 2026-01-29

Locations

1 site across 1 country: United States