NCT06177990

Caregiver as Navigator: Develop Skills Online (CAN-DO)

Caregiver as Navigator: Develop Skills Online (CAN-DO) Developing Dementia Family Caregiver Mastery for Navigating Complex Health, Social Service, Legal, Financial, and Family Systems

• Status: Recruiting
• Phase: N/A
• Study type: Interventional
• Enrollment: 270 (estimated)
• Sponsor: Emory University · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

This study is designed to learn more about ways to promote caregiver mastery online. 270 dementia family caregivers will be enrolled and randomized to take the CAN-DO online course immediately or after a waiting period. They will participate in interviews before and after the course; total time of study participation is 6 months.

Detailed description

Family members and friends are the core of the uncoordinated system of care that tenuously maintains persons living with dementia in their community settings and delays their placement into more costly settings of institutional care, providing more contributed and out of pocket care support than Medicare and Medicaid combined. The CAN-DO program fills a significant gap in caregiver psychoeducation programming by focusing not principally on day-to-day care management but on the many substantial system navigation tasks that caregivers assume. Supported by preliminary efficacy data, CAN-DO will employ state-of-the art asynchronous interactive learning methods to enhance caregivers' mastery of skills and confidence to navigate healthcare and other (legal, financial, social service, and family) systems that are crucial to the continued community living of persons affected with dementia illnesses. This study will enroll 270 dementia family caregivers who will be randomized to take the CAN-DO course immediately or after a waiting period. They will participate in interviews before and after the course; total time of study participation is 6 months.

Conditions

• Dementia

Interventions

Type	Name	Description
OTHER	Caregiver as Navigator: Develop Skills Online (CAN-DO) program	Online, asynchronous psychoeducation program for dementia family caregivers. The program is meant to enhance caregivers' knowledge and skills for navigating healthcare, financial, legal, and family systems. The program has three main sections. * The first section provides information and how to prepare for using the healthcare system and community-based services in dementia care and support. * The second provides information about how to be more effective when using the financial and legal system either for yourself or your person. * The third section of the course provides information about ways to manage and navigate family dynamics present in various caregiving scenarios more effectively.
OTHER	Healthy Living online course	Online program for dementia family caregivers about "Healthy Living" for the first 4 months post-randomization.

Timeline

• Start date: 2024-12-26
• Primary completion: 2028-03-01
• Completion: 2028-03-01
• First posted: 2023-12-20
• Last updated: 2026-01-12

Locations

1 site across 1 country: United States