NCT06103903

Measure of Acceptance of chRonic Visible sKin conditionS

Acceptance Des Maladies Chroniques Dermatologiques Visibles : Constitution d'échelles Pour le Patient et Son Cluster Familial

• Status: Unknown
• Phase: —
• Study type: Observational
• Enrollment: 250 (estimated)
• Sponsor: University Hospital, Tours · Academic / Other
• Sex: All
• Age: 6 Years
• Healthy volunteers: —

Summary

The objective of this protocol is to validate 4 scales for evaluating the acceptance of visible chronic dermatological diseases (port wine stains, alopecia areata, vitiligo, hyperpigmentation...) with a large number of patients (children, adolescents, adults) and their parents (depending on the composition of the family cluster), in a multicentric manner (for territorial representativeness).

Detailed description

The objective of this protocol is to validate 4 scales for evaluating the acceptance of visible chronic dermatological diseases (port wine stains, alopecia areata, vitiligo, hyperpigmentation...) with a large number of patients (children, adolescents, adults) and their parents (depending on the composition of the family cluster), in a multicentric manner (for territorial representativeness). The investigator will screen the patients and give them a link to complete the questionnaire (according to the age), that includes a pre-scale of acceptation of 50-55 items.

Conditions

• Acceptance of Visible Chronic Dermatological Disease
• Disease Acceptance
• Psychological Well-Being
• Social Segregation

Interventions

Type	Name	Description
BEHAVIORAL	Questionnaire	Questionnaire according to age (6-13;14-17); the parents for minors and adults

Timeline

• Start date: 2022-01-01
• Primary completion: 2025-12-31
• Completion: 2025-12-31
• First posted: 2023-10-27
• Last updated: 2023-10-27

Locations

1 site across 1 country: France