NCT06024278

Developing and Testing Culturally Based Educational Videos for Puerto Rican and African American Home Hospice Caregivers

Developing and Pilot Testing Culturally Based Educational Videos for Puerto Rican and African American Home Hospice Caregivers

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 20 (actual)
• Sponsor: Weill Medical College of Cornell University · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Accepted

Summary

The investigators hypothesize that culturally based educational videos for Puerto Rican and African American home hospice caregivers will better inform caregivers in managing symptoms, preparedness, self-efficacy, and competence.

Detailed description

The clinical trial for this project is a cross-sectional study conducted with VNS Health hospice, Hospicio Toque de Amor, and Hospicio Luz Celeste. Names of Puerto Rican and African American caregivers receiving home hospice care will be referred to the study team by the site leader/hospice leadership at each hospice. Demographic data will be collected from each caregiver participant. Prior to showing participants the culturally tailored videos, a research member will administer a set of Likert style questions developed by the research team around comfort in managing symptom related issues. The same questions will be administered again post video intervention. In addition, the preparedness scale, chronic pain self-efficacy scale, and caregiving competence scale will be administered to participants pre and post video intervention. The PI will not be involved in the administering the intervention for this study. After the culturally tailored videos have been shown to the participant, a research member will also conduct an open-ended interview about content, reactions, attitudes, usefulness and limitations around each video. Interviews will be conducted in either English and/or Spanish.

Conditions

• Caregivers of Patients on Hospice Care

Interventions

Type	Name	Description
BEHAVIORAL	Caregiver educational videos for African American caregivers	The intervention will be culturally tailored education videos for African American caregivers receiving hospice services.
BEHAVIORAL	Caregiver educational videos for Puerto Rican caregivers	The intervention will be culturally tailored education videos for Puerto Rican caregivers receiving hospice services.

Timeline

• Start date: 2023-06-05
• Primary completion: 2024-02-22
• Completion: 2024-02-22
• First posted: 2023-09-06
• Last updated: 2024-12-11
• Results posted: 2024-12-11

Locations

3 sites across 2 countries: United States, Puerto Rico