Trials / Recruiting
RecruitingNCT05955014
Data Collection Protocol for Patients With Von Hippel Lindau Disease
- Status
- Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 125 (estimated)
- Sponsor
- M.D. Anderson Cancer Center · Academic / Other
- Sex
- All
- Age
- 18 Years
- Healthy volunteers
- Not accepted
Summary
To collect information from patients with vHL disease. Information collected will include data on the status of the disease, any surgeries or therapies patients have received for vHL disease, and quality of life.
Detailed description
Primary Objectives: * Obtain prospective and retrospective data on lesion development, surgical history and systemic therapy use in patients with vHL disease * Assess genotype-phenotype correlation between VHL mutation type and patterns of lesion development * Assess genotype-phenotype correlation for response to belzutifan in an organ-specific manner Secondary Objectives: --Obtain quality of life data in patients with vHL disease
Conditions
Timeline
- Start date
- 2023-08-24
- Primary completion
- 2026-12-31
- Completion
- 2026-12-31
- First posted
- 2023-07-20
- Last updated
- 2025-11-20
Locations
1 site across 1 country: United States
Source: ClinicalTrials.gov record NCT05955014. Inclusion in this directory is not an endorsement.