NCT05785494

Web-based Support for Family Caregivers of Patients With Advanced Cancer

Web-based Support to Promote Preparedness for Caregiving Among Family Caregivers of Patients With Advanced Cancer

• Status: Active Not Recruiting
• Phase: N/A
• Study type: Interventional
• Enrollment: 204 (actual)
• Sponsor: Ersta Sköndal University College · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

For family caregivers of patients with advanced cancer, preparedness for caregiving is crucial for maintaining health and quality of life both during care and after the death of the patient. This project contributes to earlier research funded by the Swedish Cancer Society, about an intervention that was delivered by a multi-professional team and proved to be successful in promoting preparedness. However, such interventions are often costly and logistically challenging. In addition, the Covid-19 pandemic has further significantly raised the need for digital alternatives in healthcare. As a possible solution, an evidence-based intervention, narstaende.se, has been developed consisting of recorded videos of conversations between clinicians and family caregivers (actors), linked to informational texts and a moderated chat forum. The intervention was pilot tested during 2020 and 2021, exploring feasibility, content and family caregivers' experiences. As preliminary results are promising, the intervention is taken one step further and tested as a web-based intervention in a larger scale.

Conditions

• Family
• End of Life
• Cancer Metastatic
• Chronic Illness

Interventions

Type	Name	Description
OTHER	Narstaende.se	Web-site with supportive information, videos and chat forum targeting family caregivers of patients with life-threatening illness.

Timeline

• Start date: 2022-09-01
• Primary completion: 2023-12-31
• Completion: 2026-12-31
• First posted: 2023-03-27
• Last updated: 2025-08-08

Locations

1 site across 1 country: Sweden