NCT05771727

Impact of Covid-19 Pandemic on Children With Neuromuscular Disease and Their Parents in Turkey: Parent Perspective

• Status: Completed
• Phase: —
• Study type: Observational
• Enrollment: 134 (actual)
• Sponsor: Hacettepe University · Academic / Other
• Sex: All
• Age: —
• Healthy volunteers: —

Summary

Parents of children with neuromuscular disease have been already at risk of depression, anxiety and burden. Additionally, the daily lives of children with neuromuscular disease and their parents have been significantly affected by the COVID-19 pandemic. Therefore, this study investigated parents' perspective on the effect of the COVID-19 pandemic on children with neuromuscular diseases and themselves.

Detailed description

The 55-item survey created by the researchers was applied online to determine the psychological and physical effects of COVID-19 on neuromuscular patients and their families. This survey also included the Content of the 9-Item Caregiver COVID-19 Limitations Scale (CCLS-9).

Conditions

• Neuromuscular Diseases

Interventions

Type	Name	Description
OTHER	survey	The 55-item survey created by the researchers was applied online to determine the psychological and physical effects of COVID-19 on neuromuscular patients and their families. This survey also included the Content of the 9-Item Caregiver COVID-19 Limitations Scale (CCLS-9).

Timeline

• Start date: 2021-07-01
• Primary completion: 2021-08-01
• Completion: 2021-10-01
• First posted: 2023-03-16
• Last updated: 2023-03-16

Locations

1 site across 1 country: Turkey (Türkiye)