NCT05745285

Leukemia and Lymphoma Society (LLS) Services Impact on Outcomes and Care

The Impact of a Non-Profit Cancer Advocacy Organization on Patient Reported Outcomes and Access to Care: A Multisite, Longitudinal Trial

• Status: Recruiting
• Phase: N/A
• Study type: Interventional
• Enrollment: 400 (estimated)
• Sponsor: University of Miami · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Not accepted

Summary

The purpose of this study is to learn about the impact that the services and programs provided by Blood Cancer United (formerly, The Leukemia and Lymphoma Society) have among patients with blood cancer, such as access to care, quality of life, and financial burden.

Conditions

• Leukemia
• Lymphoma
• Myeloma
• Myelodysplastic Syndromes
• Myeloproliferative Neoplasm

Interventions

Type	Name	Description
OTHER	LLS Program	The intervention will be conducted virtually. Participants will receive LLS's free patient and caregiver services including co-pay assistance, transportation and urgent need assistance, a scholarship program for young adult patients and survivors, one-on-one peer-to-peer support, online chats and support groups facilitated by clinical social workers, and nutrition counseling with a registered dietician for 6 months.

Timeline

• Start date: 2025-02-04
• Primary completion: 2026-10-31
• Completion: 2026-11-01
• First posted: 2023-02-27
• Last updated: 2026-02-20

Locations

3 sites across 1 country: United States