NCT05599659

The Calgary Movement Disorders Advanced Care Pilot Program

• Status: Unknown
• Phase: N/A
• Study type: Interventional
• Enrollment: 100 (estimated)
• Sponsor: University of Calgary · Academic / Other
• Sex: All
• Age: 20 Years – 100 Years
• Healthy volunteers: Not accepted

Summary

The goal of this clinical trial is to analyse the effect of palliative care interventions on quality of life, patient satisfaction, carepartner burden and health care utilization patterns in patients living with parkisonism and their carepartners. Participants will: * Receive multidisciplinary palliative care. * Answer questions related to the quality of life, patient satisfaction, carepartner burden and health care utilization patterns.

Conditions

• Parkinson's Disease and Parkinsonism

Interventions

Type	Name	Description
BEHAVIORAL	Palliative care	It is a pilot model of outpatient clinical care for patients in advanced stages of PDRD that will allow earlier access to PC in this population. PC visits will be in person or by telemedicine every three months and complemented with phone calls by different team members when needed as defined by the PC team. The typical visit duration will be 2 to 2.5 hours and address nonmotor symptoms, goals of care, anticipatory guidance, difficult emotions, and carepartner support. Providers will communicate in-person or via notes during the clinic visit to increase interdisciplinary coordination and meet at the end of the day for discussion including follow-up plans. The team will consist of a neurologist, a registered nurse with palliative care experience and training, a psychology counselor, a social worker, spiritual counselor and a research assistant.

Timeline

• Start date: 2022-11-04
• Primary completion: 2024-11-04
• Completion: 2024-11-04
• First posted: 2022-10-31
• Last updated: 2022-10-31

Locations

1 site across 1 country: Canada