NCT05545839

Transition to Adulthood Through Coaching and Empowerment in Rheumatology

TRACER: Transition to Adulthood Through Coaching and Empowerment in Rheumatology, A Feasibility Study

• Status: Completed
• Phase: N/A
• Study type: Interventional
• Enrollment: 26 (actual)
• Sponsor: McMaster University · Academic / Other
• Sex: All
• Age: 17 Years – 18 Years
• Healthy volunteers: Not accepted

Summary

TRACER is a study aiming to investigate the feasibility of transition coaching sessions for patients moving from paediatric to adult rheumatology care.

Detailed description

TRACER is a feasibility study investigating transition coaching for patients with rheumatic disease transferring from paediatric to adult rheumatology care. This is a vulnerable time in the patients' care and life as they are assuming more responsibility for their health and undergoing significant life transitions. There is risk for increased morbidity and mortality around this time if the patient are not well supported and if they do not stay engaged with care. This intervention aim to provide self-efficacy, self-management, coping skills and support to patients making the transition. This study aims to assess the feasibility of conducting a multi-centre randomized trial.

Conditions

• Juvenile Idiopathic Arthritis
• Juvenile Rheumatoid Arthritis
• Juvenile Dermatomyositis
• Juvenile Psoriatic Arthritis
• Autoinflammatory Disease
• Autoimmune Diseases
• Lupus Erythematosus

Interventions

Type	Name	Description
BEHAVIORAL	Transition coaching	Transition coaching sessions (8 sessions), covering paediatric to adult care, self-advocacy, medication management, general health, lifestyle and behaviours, future planning, screening for mood disorders and coping skills.

Timeline

• Start date: 2022-10-17
• Primary completion: 2025-05-01
• Completion: 2025-12-31
• First posted: 2022-09-19
• Last updated: 2026-02-11

Locations

2 sites across 1 country: Canada