NCT05532982

Parkinson's Disease in Asian Americans

Barriers and Motivators Associated With Access to Care and Participation in Research Studies for Parkinson's Disease Among Asian Americans

• Status: Recruiting
• Phase: —
• Study type: Observational
• Enrollment: 430 (estimated)
• Sponsor: Tufts University · Academic / Other
• Sex: All
• Age: 18 Years
• Healthy volunteers: Accepted

Summary

The ultimate goal of this project is to use the findings to develop culturally appropriate programs and resources that can be disseminated to key stakeholders to improve access to PD care and increase inclusivity in PD research for Asian Americans. This study will serve as a first step towards developing broader community and patient education programs and active outreach campaigns to increase PD-specific literacy among Asian Americans. The results from this study will elucidate the role that language barriers, cultural perceptions, family influence, and other predisposing, enabling, or need factors have on delaying care for PD among Asian Americans. It will also provide much needed insight on how to improve inclusion of Asian Americans in PD research studies.

Conditions

• Parkinson's Disease

Interventions

Type	Name	Description
OTHER	Interviews and Surveys	Qualitative interviews and surveys

Timeline

• Start date: 2022-10-15
• Primary completion: 2024-11-30
• Completion: 2024-11-30
• First posted: 2022-09-08
• Last updated: 2024-05-20

Locations

1 site across 1 country: United States