Trials / Recruiting
RecruitingNCT05444920
The Italian Transthyretin Amyloidosis Web-Network
The Italian Transthyretin Amyloidosis Web-Network (ITA-WebNet)
- Status
- Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 1,000 (estimated)
- Sponsor
- Fondazione IRCCS Policlinico San Matteo di Pavia · Academic / Other
- Sex
- All
- Age
- 18 Years – 99 Years
- Healthy volunteers
- Not accepted
Summary
The study aims, by generating a large registry of patients with ATTR amyloidosis, including data at diagnosis and during follow up, to describe the natural history of ATTR amyloidosis in a real-world setting and to define and validate prognostic models, response criteria applicable at any point of the disease. The registry will also be used for data sharing and to allow the possibility of a close collaboration amongst the amyloidosis experts of the ARTC and all the physicians around the Country involved in the diagnosis and management of systemic amyloidosis. Thanks to the online registry, the diagnostic facility of the ARTC will be made available to requesting physicians.
Conditions
Timeline
- Start date
- 2022-07-13
- Primary completion
- 2026-12-31
- Completion
- 2027-11-01
- First posted
- 2022-07-06
- Last updated
- 2026-03-27
Locations
30 sites across 1 country: Italy
Source: ClinicalTrials.gov record NCT05444920. Inclusion in this directory is not an endorsement.