NCT05434572

CIMR Neuromuscular Research Biobank

Center for Inherited Muscle Research Neuromuscular Research Biobank

• Status: Recruiting
• Phase: —
• Study type: Observational
• Enrollment: 500 (estimated)
• Sponsor: Virginia Commonwealth University · Academic / Other
• Sex: All
• Age: 75 Years
• Healthy volunteers: Accepted

Summary

The purpose of this research repository is to collect, store, and share with other researchers any tissues that subjects with all types of neuromuscular disease are willing to donate. These samples will be stored at Virginia Commonwealth University (VCU) and will be used for future research with this population.

Detailed description

The study involves collection of medical information about research participants and their families. No identifying information about family members will be collected. Research participants will be asked for any general knowledge they have related to possible neurological disorders. Research participants are also given the opportunity to provide blood, skin cells, urine, saliva, fecal matter, muscle tissue, cells, DNA and/or RNA samples. Before any study procedures take place, the informed consent form will be provided and reviewed with potential research participants in detail. Potential research participants will have an opportunity to ask additional questions before starting any study procedures.

Conditions

• Neuromuscular Diseases
• Neuromuscular Disorder
• Neuromuscular Diseases in Children

Timeline

• Start date: 2021-03-17
• Primary completion: 2030-01-01
• Completion: 2030-02-01
• First posted: 2022-06-28
• Last updated: 2025-07-04

Locations

1 site across 1 country: United States