NCT05381233

Quality of Life and Functional Performance in Children With Spastic Cerebral Palsy

Quality of Life and Functional Performance in Children With Spastic Cerebral Palsy in Relation to Care Burden and Fatigue of Their Mothers

• Status: Unknown
• Phase: N/A
• Study type: Interventional
• Enrollment: 200 (estimated)
• Sponsor: Sara Shawki Mohamed · Academic / Other
• Sex: All
• Age: 2 Years – 18 Years
• Healthy volunteers: Not accepted

Summary

Caregiver Burden (CB) is expressed as a multidimensional response related to caregiving, including physical, psychological, emotional, social, and economic problems and has been identified as a public health concern. All these factors negatively affect caregiver health and indirectly affect the care of the disabled child .To provide better support for parents of children with CP, we must understand the difficulties faced those parents and identify the key and common areas where assistance can be rendered.

Detailed description

The symptoms of CP vary from person to person. A person with severe CP might need to use special equipment to be able to walk, or might not be able to walk at all and might need lifelong care. A person with mild CP, on the other hand, might walk a little awkwardly, but might not need any special help. CP does not get worse over time, though the exact symptoms can change over a person's lifetime.

Conditions

• Evaluations

Interventions

Type	Name	Description
OTHER	Gross motor function classification System (GMFCS)	assessment
OTHER	Arabic Version of Zarit burden Inventory measure	assessment
OTHER	Arabic Version of Chalder Fatigue Scale (CFQ version 11)	assessment

Timeline

• Start date: 2022-01-01
• Primary completion: 2024-06-01
• Completion: 2024-07-15
• First posted: 2022-05-19
• Last updated: 2022-05-19

Locations

1 site across 1 country: Egypt