Trials / Recruiting
RecruitingNCT05329714
PVRI GoDeep Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension
PVRI Global Deep Phenotyping Meta-Registry for Pulmonary Hypertension
- Status
- Recruiting
- Phase
- —
- Study type
- Observational
- Enrollment
- 40,000 (estimated)
- Sponsor
- University of Giessen · Academic / Other
- Sex
- All
- Age
- —
- Healthy volunteers
- Accepted
Summary
PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center. Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients.
Detailed description
PVRI-GoDeep is a PH Meta-Registry, run under the umbrella of the Pulmonary Vascular Research Institute (PVRI). It merges anonymized PH patient related data from various local registries around the world run under the responsibility of PVRI members. It will be operated under the auspices of the University of Giessen/Giessen PH center. Combining deep phenotyping with worldwide outreach, PVRI-GoDeep aims to offer insights into specific geographical and ethnical profiles of PH, to deepen the epidemiological, clinical and molecular understanding of this disease and to promote strategies for improved individualized treatment of PH patients. The data provided by PVRI-GoDeep will support academia to perform scientific projects in the field of PH. Pharmaceutical / commercial companies will be charged fee for access to PVRI-GoDeep data and / or analysis, thereby creating revenues exclusively devoted to support the PVRI mission and the registries entering their data into PVRI-GoDeep. All requests from academia or commercial companies are to be decided by the PVRI-GoDeep consortium, serving as Use and Access Committee.
Conditions
Timeline
- Start date
- 2020-01-30
- Primary completion
- 2050-01-30
- Completion
- 2055-01-30
- First posted
- 2022-04-15
- Last updated
- 2025-04-04
Locations
1 site across 1 country: Germany
Source: ClinicalTrials.gov record NCT05329714. Inclusion in this directory is not an endorsement.